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Engaging patients in healthcare / Angela Coulter.

By: Coulter, Angela.
Material type: materialTypeLabelBookPublisher: Maidenhead : Open University Press, 2011Description: xi, 201 p. : ill.ISBN: 9780335242719; 9780335242726.Subject(s): Patient education | Patient participation -- England | Medical care -- Decision making -- Citizen participation | Public health -- England -- Citizen participation | Health and Wellbeing | Public health & preventive medicine | Doctor/patient relationship | Medicine: general issuesDDC classification: 362.10941 Summary: This is a complete guide to patient engagement and participation in healthcare. It explains the theories and models used when engaging patients at all levels and in a variety of sectors, as well as giving practical examples to illustrate the reality of patient involvement, and how it impacts on health outcomes.
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Item type Current library Call number Copy number Status Barcode
General lending MTU Kerry North Campus Library First Floor Main 362.10941 COU (Browse shelf(Opens below)) 1 Available 38888000811962
Total holds: 0

Enhanced descriptions from Syndetics:

This evidence-based guide provides the first comprehensive overview of patient engagement and participation in healthcare. It has been written for all those who want to understand the various ways in which patient and public engagement can contribute to better health outcomes.

Angela Coulter explains the theories, models and policies at the heart of patient involvement as well as giving extensive practical examples to demonstrate the reality of involving patients. The book includes an examination of patients' roles in respect of:

Improving care processes Building health literacy Selecting treatments Strengthening self-care Ensuring safer care Participating in research Training professionals Shaping services Clearly written by a leading author in the field and well illustrated with data, examples and evidence, the book includes practical descriptions of real patient engagement, together with critical review and suggestions to guide future developments. This guide also brings together an extensive body of international evidence, making it the most current and original text on the market.

Engaging Patients in Healthcare is essential reading for students and professionals working and studying in public health, health care management, health services and beyond.

" This book is the roadmap we need to guide the creation of the healthcare system we've all dreamed about - one that truly taps the power of patient and professional wisdom."

Susan Edgman-Levitan, PA, Executive Director, Stoeckle Center for Primary Care Innovation, Massachusetts General Hospital, USA

"This book provides the building blocks from which healthcare professionals can try to engage people more, from consultation based practices, such as shared decision making and improved self management, to deeper changes in shaping services and training professionals."

British Medical Journal, 2011

"Policy makers and practitioners will benefit from Angela Coulter's analysis of the challenges of securing effective engagement and the ideas she puts forward for overcoming these challenges."

Chris Ham, Chief Executive of The King's Fund, London, UK

"Angela Coulter has managed to de-mystify the concepts of patient engagement in health care in a readable, balanced, thought-provoking primer. A "must read" for students, educators, practitioners, managers, and policy makers needing a primer or update."

Annette O'Connor, Emeritus Professor University of Ottawa, Canada

"Committed doyenne, Coulter writes superbly about patients as the greatest untapped resource in healthcare. At a time when health services face so many challenges across the globe, there are solutions here that need urgent attention."

Professor Glyn Elwyn BA MB BCh MSc FRCGP PhDDirector of Research, Department of Primary Care and Public Health, Clinical Epidemiology IRG, Cardiff University, UK

"While politicians pay increasing obeisance to the notion of 'patient-centred care' patients often experience a service built around the needs of healthcare organisations and professionals. The challenge is to translate the often woolly rhetoric of "no decision about me without me" into practical steps that improve the quality of care, and keep it affordable as cost pressures mushroom. Those who are serious about taking on this challenge could do no better than study Dr Coulter's crisp and cogent overview of the theory, evidence and practice of patient engagement. "

Jeremy Taylor, Chief Executive, National Voices

Includes bibliographical references and index.

This is a complete guide to patient engagement and participation in healthcare. It explains the theories and models used when engaging patients at all levels and in a variety of sectors, as well as giving practical examples to illustrate the reality of patient involvement, and how it impacts on health outcomes.

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Table of contents provided by Syndetics

  • Preface (p. xiii)
  • Acknowledgements (p. xv)
  • 1 The policy context (p. 1)
  • Overview (p. 1)
  • The case for engagement (p. 1)
  • Challenging professional dominance (p. 2)
  • Promoting responsiveness (p. 3)
  • Policy goals (p. 5)
  • The patient's role (p. 6)
  • Trust (p. 8)
  • A note on terminology (p. 8)
  • Summary (p. 10)
  • References (p. 11)
  • 2 Improving care processes (p. 12)
  • Overview (p. 12)
  • Policy levers (p. 12)
  • Patient-centred care (p. 14)
  • Patients' priorities (p. 15)
  • Monitoring the quality of care (p. 16)
  • Substandard care (p. 17)
  • International comparisons (p. 19)
  • Obtaining and using patient feedback (p. 19)
  • Perceptions of NHS care (p. 20)
  • Incentivizing quality improvements (p. 21)
  • Giving patients a choice of provider (p. 22)
  • The pros and cons of choice (p. 24)
  • Exercising choice (p. 25)
  • Strengthening patients' rights (p. 26)
  • The Patients' Charter (p. 27)
  • The NHS Constitution (p. 27)
  • Involving patients in redesigning services (p. 28)
  • Experience-based design (p. 30)
  • Summary (p. 31)
  • References (p. 31)
  • Further reading (p. 34)
  • 3 Building health literacy (p. 35)
  • Overview (p. 35)
  • The importance of health literacy (p. 35)
  • Literacy and health inequalities (p. 36)
  • Measuring health literacy (p. 36)
  • Raising standards (p. 37)
  • Health education (p. 38)
  • Theories of health behaviour (p. 39)
  • Health information (p. 41)
  • Information sources (p. 42)
  • Health information on the Internet (p. 43)
  • Information quality (p. 44)
  • Information as therapy (p. 46)
  • Impact of health information (p. 46)
  • Health in the media (p. 47)
  • Impact of media stories (p. 49)
  • Disease-mongering (p. 50)
  • Social marketing (p. 52)
  • Summary (p. 54)
  • References (p. 54)
  • Further reading (p. 57)
  • 4 Selecting treatments (p. 58)
  • Overview (p. 58)
  • Shared decision-making (p. 58)
  • Practice variations (p. 59)
  • Sharing expertise (p. 61)
  • Clinician-patient relationships (p. 61)
  • Shared decision-making and health reform (p. 62)
  • Expectations of involvement (p. 64)
  • Lack of involvement in decisions (p. 65)
  • Informed consent (p. 66)
  • Patient decision aids (p. 68)
  • Risk communication (p. 70)
  • Support for participation (p. 71)
  • Advance care plans (p. 73)
  • Improving decision quality (p. 75)
  • Overcoming the barriers (p. 76)
  • Summary (p. 77)
  • References (p. 78)
  • Further reading (p. 82)
  • 5 Strengthening self-care (p. 83)
  • Overview (p. 83)
  • Managing minor illness (p. 83)
  • Support for self-care (p. 84)
  • The importance of chronic disease (p. 85)
  • Self-management of long-term conditions (p. 86)
  • Care planning (p. 87)
  • The Chronic Care Model (p. 88)
  • Collaborative care (p. 90)
  • Chronic care system (p. 91)
  • Theoretical underpinnings (p. 92)
  • Self-management education (p. 93)
  • Integrated self-management support (p. 94)
  • Supporting people in their own homes (p. 95)
  • Record access (p. 97)
  • Personal health budgets (p. 99)
  • Evidence on what works (p. 100)
  • Summary (p. 102)
  • References (p. 102)
  • Further reading (p. 106)
  • 6 Ensuring safer care (p. 108)
  • Overview (p. 108)
  • Patient safety (p. 108)
  • Patients' contribution (p. 109)
  • Choosing a safe healthcare provider (p. 111)
  • Helping to reach an accurate diagnosis (p. 112)
  • Participating in treatment decision-making (p. 112)
  • Contributing to safe medication use (p. 113)
  • Participating in infection control initiatives (p. 114)
  • Checking the accuracy of medical records (p. 115)
  • Observing and checking care processes (p. 116)
  • Reporting adverse events (p. 117)
  • Practising effective self-care (p. 118)
  • Advocacy and feedback (p. 118)
  • When things go wrong (p. 120)
  • Summary (p. 121)
  • References (p. 121)
  • Further reading (p. 125)
  • 7 Participating in research (p. 126)
  • Overview (p. 126)
  • The importance of patients' role in research (p. 126)
  • Participatory research (p. 127)
  • Determining research priorities (p. 128)
  • Commissioning research (p. 130)
  • Designing studies (p. 130)
  • Recruiting participants (p. 131)
  • Measuring health outcomes (p. 133)
  • Gathering and analysing data (p. 135)
  • Disseminating and using research findings (p. 136)
  • Supporting involvement in research (p. 138)
  • Assessing impact (p. 138)
  • Summary (p. 139)
  • References (p. 140)
  • Further reading (p. 142)
  • 8 Training professionals (p. 143)
  • Overview (p. 143)
  • Educational challenges (p. 143)
  • Future training needs (p. 144)
  • Setting standards (p. 145)
  • Learning to communicate (p. 148)
  • The hidden curriculum (p. 149)
  • Learning to work in teams (p. 150)
  • Cultural competence (p. 153)
  • Patients as teachers (p. 154)
  • Community-based learning (p. 157)
  • Summary (p. 157)
  • References (p. 158)
  • Further reading (p. 160)
  • 9 Shaping services (p. 162)
  • Overview (p. 162)
  • Social capital, co-production and participatory democracy (p. 162)
  • Early patient groups (p. 164)
  • Growth of patient organizations (p. 165)
  • Influencing policy (p. 166)
  • Community Health Councils (p. 167)
  • New statutory groups (p. 167)
  • Community groups (p. 168)
  • Involvement in commissioning (p. 169)
  • Accountability (p. 171)
  • Governance (p. 172)
  • Engagement methods (p. 173)
  • Determining local needs and aspirations (p. 175)
  • Deciding on spending priorities (p. 176)
  • Service development (p. 178)
  • Promoting health and reducing inequalities (p. 179)
  • Summary (p. 180)
  • References (p. 181)
  • Further reading (p. 183)
  • 10 Patients - the greatest untapped resource? (p. 184)
  • Overview (p. 184)
  • Assembling a balance sheet (p. 184)
  • Improving care processes (p. 184)
  • Building health literacy (p. 185)
  • Selecting treatments (p. 186)
  • Strengthening self-care (p. 186)
  • Ensuring safer care (p. 187)
  • Participating in research (p. 188)
  • Training professionals (p. 188)
  • Shaping services (p. 188)
  • Strengthening impact (p. 189)
  • Personalizing care (p. 189)
  • Prioritizing health literacy (p. 190)
  • Demystifying medical knowledge (p. 190)
  • Engaging citizens (p. 191)
  • Index (p. 192)

Author notes provided by Syndetics

Angela Coulter is Director of Global Initiatives at the Foundation for Informed Medical Derision Making, Boston, and Senior Researcher at the Department of Public Health, University of Oxford, UK. Her previous roles included Chief Executive of Picker Institute Europe, Director of Policy and Development at the King's Fund, and Director of the Health Services Research Unit at the University of Oxford, UK.